Global Genes and RARE-X Partner to Enable Patient Data Collection for Rare Disease Groups

ALISO VIEJO, Calif.--(BUSINESS WIRE)--Global Genes, a leading international rare disease advocacy organization, today announced a partnership with RARE-X to equip patient communities to leverage their data to drive rare disease research and drug development. RARE-X, a technology nonprofit, securely gathers, structures, and shares patient-owned data to accelerate diagnosis, treatments, and...

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